What is RB Canada Research?
RB Canada Research is connecting people affected by retinoblastoma to new retinoblastoma research results and opportunities. It is a part of the Canadian Retinoblastoma Patient Engagement Strategy, which is led by the Canadian Retinoblastoma Research Advisory Board (CRRAB) and aims to:
- Share research results with people affected by retinoblastoma (e.g., survivor, the immediate family of someone diagnosed with retinoblastoma etc.);
- Include a large diverse group of people affected by retinoblastoma in research; and
- Promote research that is created and led by people affected by retinoblastoma.
Click here to learn more on how you can receive updates on retinoblastoma research results and opportunities.
What is CRRAB?
The Canadian Retinoblastoma Research Advisory Board (CRRAB) was created December 2016 to respond to the need for inclusive, high-quality, and translatable research. The general membership includes people affected by retinoblastoma (e.g., survivors, the immediate family of someone diagnosed with retinoblastoma etc.), clinicians, allied healthcare providers, researchers, patient engagement experts and policymakers.
CRRAB’s aim is to create meaningful, co-directed retinoblastoma research that is relevant to patients and improves outcomes. If you would like to join CRRAB or attend the next annual meeting, please email us at: CRRAB.email@example.com.
Why is this important?
Retinoblastoma is an aggressive childhood eye cancer that is generally caused by a mutation of the RB1 gene1. There are approximately 26 newly diagnosed children in Canada 8,000 around the world each year, with approximately half of all cases being hereditary2.
Where can I learn more?
The One Retinoblastoma World map displays retinoblastoma treatment centres, and explores the bold idea that all children with retinoblastoma can have equal opportunity to optimal retinoblastoma care.
World Eye Cancer Hope strives for life and sight for every child. It has a number of resources available to learn more about retinoblastoma.
- Theriault BL, Dimaras H, Gallie BL, Corson TW. The genomic landscape of retinoblastoma: a review. Clin Experiment Ophthalmol 2014; 42(1): 33-52.
- Dimaras H, Corson TW, Cobrinik D, et al. Retinoblastoma. Nature Reviews Disease Primers 2015:15021.